Thank you all so much for your prayers for Coleton! We saw his hematologist on Monday and she told us that the reactions that Coleton has been having when he gets a factor infusion and the lab results that have been showing his factor levels are lower than they were earlier this year, both tell us that the inhibitor is back, though it is "keeping a low profile" and is not having a dramatic effect on his treatment. Coleton is on one immune suppressant medication, which he takes twice a day orally. His hematologist is going to be talking to some immunologists to see if there are other immune suppressants we should try. Also, because of the reactions he has been having, he gets a small dose of Benadryl before each infusion now, though so far we haven't seen much change since he started that. The new plan, as of Monday, is that we're going to be giving him factor infusions daily (vs. 3x/week) for a while to see if we can't stop the reactions. Please pray for wisdom and insight for Coleton's hematologist as she seeks counsel from other doctors and continues to ponder Coleton's situation. Please pray against anxiety for Coleton. He does pretty well, but he does get anxious before getting an infusion. Please pray for peace and wisdom for Chase and me as we care for Coleton. Thank you so much for praying!
