More good news! This morning, labs were drawn to check Coleton's factor levels again. The results were that the factor level was at 63%. Typically the half life of the factor (after 12-18 hours) will be half. These labs were drawn almost 24 hours after the original labs, which measured the factor at 136%. Coleton's doctor said that she is very very happy with these results, and she was not expecting them to be so good. He was given his second dose of factor this morning, shortly after labs were drawn, and that went very well. His factor level since that has gone up to over 200%! Other than being a little crankier than usual at times (likely due to the meds.), he is doing very well.
Coleton was delighted to receive a gift delivery from the church family today! He loves his puppy and balloon! It came at the perfect time, when he was getting restless to get out of bed and be free from the port needle and all the tubes running into it. This kept him entertained for that last half hour before they were able to de-access him. He is now free from needles and tubes, playing with Daddy in the playroom, without having to be followed around by Mom with his i.v. pole. Needless to say, he is thrilled about this.
Tomorrow and Sunday, we will go through the same routine as these last 2 days. Please continue to pray that the inhibitor would be gone. Often the inhibitor would show up 3-5 days after exposure to the factor. Tomorrow will be the third day, so please continue to pray! Thank you so much! Things are going very well, and we are praising the Lord for His goodness to us and for you and your prayers for us!
Love in Christ,
Chase and Sarah
That is great news! We will keep praying! Sarina looks adorable...she looks so much like your (Sarah) Mom in that pic!
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