This is Coleton's least favorite part!

He is quite the trooper.

Coleton's doctor giving the first dose of factor.

Thank you all so much for your prayers for Coleton!  He is doing very well.  He received his first dose of factor around 10:30 am, and he has had no allergic reactions.  The only side effect from all the other meds. was an initial response of drowsiness to the Benadryl, which was minor and to be expected.  His body did respond to the factor, in that his factor level went up to 136% (normal levels are between 47-104%, and his was below 1% before receiving factor), so that is very good.  They will continue to monitor that, as well as every other body function, it seems.  It has been a full day.  Watching Coleton get that first dose of factor, and seeing that he showed no signs of allergic reaction was a definite high point!  He did end up jostling the needle out of his port, as he was playing, causing that needle to have to come out.  Additional lab work was needed, so he ended up needing to get an i.v. this evening, and that took a couple tries, which of course he didn’t like.  Right now he is needle-free, and he enjoyed his freedom by running around in the play area for a while.  It was great to see him, acting as we always see him, happy and full of energy.  Tomorrow morning his port will be accessed again (around 9:00 am), and he will receive his second dose of factor.  Please continue to pray that his body will not respond with an allergic reaction and that the inhibitor will not return.  We are so blessed to know that our prayer warriors are doing battle on our behalf!  Praise the Lord for what he has done this day, and for the plans He has for tomorrow!

With Love and Gratefulness,

Chase and Sarah